Wired for Life – Becoming Wired with a Pacemaker
“I was vacationing in Egypt when it all started for me; I suddenly started feeling tired and lethargic. I was unable to climb even one flight of stairs. I noticed my heart was sinking.” Mrs. Moiz expresses anxiously.
Here is the story of Mrs. Moiz and many like her who faced relatively similar symptoms before being implanted with a pacemaker.
When was the first time you experienced these symptoms, tell us briefly about it.
I had symptoms for about two weeks while I was on vacation in Egypt. Symptoms started on the third day of reaching Cairo immediately after I had walked a couple of kilometers. I assumed it was because of a tiring day due to walking and tried to rest it out. The next few days were almost the same I was unable to do any activities. Climbing a flight of stairs was also troublesome for me. Upon consulting a local GP he diagnosed me with bradycardia and attributed my symptoms to it. I was positive that once I’m home I will feel better after resting. But unfortunately, my symptoms persisted and I had to eventually consult a general physician who referred me to an electrophysiologist.
What was your diagnosis? And after being diagnosed what was your reaction?
the electrophysiologist placed a 24-hour EKG monitoring and diagnosed me with second-degree AV block. I was advised to get a pacemaker as soon as possible as my heartbeat was very low and I could end up with bigger problems if I left it unattended. I was not entirely convinced and afraid too, and I shared these thoughts with the attending doctor who counseled me very patiently and suggested that I should go for a second opinion before deciding against it. Upon consulting another EP consultant he was of the same opinion and insisted that I should not delay it. After the initial diagnosis, I was quite scared. My thoughts were that it was a foreign object, and what about side effects? I had never stayed overnight in a hospital and was unsure what was happening or why. I was beating myself over what wrong could I have done that pushed my heart into this condition. However, I had a very amazing doctor who was very patient with me and explained things clearly and every step of the way.
How much time did you take before getting the procedure done?
After a lot of contemplation, I agreed to go through the procedure on the 27th of June’23, exactly three weeks after I experienced the first symptom.
How did you find out more about your condition? Was there much information available at that time? Did your doctor provide help?
I did my own research, as there was a lot of (easily understandable) information available on the net. My doctor was a good source of information; to say that they answered my concerns and fears very well and patiently.
Do you know someone who has undergone a similar situation and did you receive positive feedback from other pacemaker patients?
I personally do not know anyone who has been in a similar medical situation but via close family and friends, I had heard those who had undergone pacemaker implantation were completely at ease and had no post-implantation complications or lifelong disabilities.
What are some of the common misperceptions and/or complaints that you’ve heard about pacemakers?
Misconceptions are aplenty! The fear of being around microwaves or electrical devices is one of many. I was told by others that I would not be able to sleep on my left side or use phones at all even after recovery. Some told me that I should be careful to travel because of fear of setting off the security or being wand-searched.
What advice do you think all doctors should have when caring for their pacemaker patients?
Advice a doctor can give is: REST, REST, REST! So many of these women were super-women in life prior to the pacemaker, and they think they should be back in the saddle immediately after surgery. However, it takes time for your body to heal, and rest is what produces a strong healing.
Is there anything else you’d like to add?
I would like to say that life with a pacemaker is not a death sentence. If anything, it has completely changed my life. Having a pacemaker brings peace of mind, which can help you return to an active life. Especially having young grandchildren around, I feel I don’t have to worry about experiencing the same symptoms I did earlier when I’m on my own with them because the pacemaker will prevent that. I would also urge the pacemaker club to consider starting a patient support group which is very important to our mental well-being. We can all agree having someone to relate to is critical when dealing with physical ailments. We all appreciate our partners and loved ones for their support, but unless they have a pacemaker, they can’t understand our concerns and worries.
This is how the story of many patients starts but; how it ends depends on how soon the patient and their family decide on undergoing implantation. With the population of elderly people on the rise and the consequent increase of people with pacemakers, examining factors associated with higher levels of anxiety and who is at the most risk is becoming more important. Research has shown that lower levels of anxiety and depression among elderly people are associated with perceptions of higher quality of life and less need for the use of health services. For the improvement of well-being in the elderly it is imperative for the health care professionals to propose preoperative and follow-up care for patients undergoing pacemaker surgery.
REFERENCES
- Dozeman E, van Schaik. DJ, Beekman AT, Stalman WA, Bosmans JE, van Marwijk HW. Depression and anxiety, an indicated prevention (DIP) protocol in homes for the elderly: feasibility and (cost) effectiveness of a stepped care programme. BMC Geriatr 2007; 7: 6.
- van Veer-Tazelaar N, van Marwijk H, van Oppen P, Nijpels G, van Hout H, Cuijpers P, et al. Prevention of anxiety and depression in the age group of 75 years and over: a randomized controlled
trial testing the feasibility and effectiveness of a generic stepped care programme among elderly community residents at high risk of developing anxiety and depression versus usual care. BMC
Public Health 2006; 6: 186